 Chronic pelvic pain advocate, educator, and artist Soula Mantalvanos, brings us a new creation that is an incredible gift to anyone suffering from chronic pain. A chronic pain patient herself, Soula created this remarkable tool for patients by a patient. {Pain}Train is a web-based platform that allows us patients to store everything related to our pain in one place. So instead of trying to explain to multiple health care providers for the umpteenth time about you, your pain, your treatments, and your history - give that health care provider access to your {Pain}Train profile and it's all there for them. Your online profile allows you to save all your information on medications, treatments, health care providers, and dates. It also allows you to upload documents, images, and reports. Beyond the medical only, it also allows for a more holistic picture of who you are by telling your professional and personal story pre-injury. And of course there is space to describe your injury, your symptoms, your diagnosis (if you have one), any other medical history or conditions, and you can store all your information on any health care coverage. There is also a mood tracker and plenty of space to include additional information for your unique situation. Access to all of this information is secure using HTTPS protocol and your email address with chosen password. The "access" feature allows you to share your profile with anyone you want to give permission to view it. Simply input each health care provider into your account and they will be assigned a unique code (or QR code) for 'read only' access to all of your profile. You can either email this information to them or print it for them. Example Profile So Organized! FREE 3 Month "Test Ride"Since {Pain}Train is offering a free "test ride" for 3 months, I tried it out for myself. I must admit, it was pretty daunting to sit down and fill in everything (and I'm not even close to being done!) But I told myself to take it in chunks. Do a little now and I can always come back to it later, everything is saved and I won't lose what I've started. And once it's done it'll be a tool I can use and reuse and update, making life so much easier. I'm planning on taking it with me to my Ob/Gyn appointment this month. And since I'm not sure if she'll be interested in having email access to my profile, I'm planning on printing it. Thankfully, the print function creates a printer-friendly, well laid-out, physical page copy version of the profile. See below: Printable VersioN Print Version Looks Nice Too! SubScription to {PAIN}TrainIf after 3 months you are finding the platform helpful, it's just $29AUD yearly to continue your subscription. That's currently about $20/year US, based on the current exchange rate. If you choose not to subscribe after your 3 free months, your profile will be deleted. {Pain}Train doesn't ask you for payment information when you first register an account. After 3 months {Pain}Train will prompt you to pay the annual subscription fee. Pay at that time to keep your subscription. Your profile is deleted if you decide not to subscribe. I encourage you to give it a try! All Aboard! Need some help creating your profile? Download simple profile instructions from {Pain}Train.
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 The New Year. It's the season of seeing lots of propositions for a "new you". I've been sensing a theme coming up here and again in my thoughts and meditations about this new year. It's hard to put it in words because it tends to arrive in images. But the main point is something like this: How can I use the beginning of the new year, the "resolution", to leverage change without it being the motivation for change?
We all know that resolutions get a bad reputation for being short-lived. I know to avoid my local gym for about the first three weeks of January and opt for some movement at home. After that, the crowd kind of thins out and I can go back to my routine. Probably, as a collective culture, resolutions aren't great motivation. But I don't want to totally dismiss this time of year and avoid reflection and goal-setting all together. I won't argue with the suggestion that we should be reflecting and goal-setting throughout the year, however the beginning of a new year is surely one of the times for it. Back to my thematic inner question: how can I leverage the new year without relying on the resolution? Your answer may be different than mine. But my suspicion is that both answers would fall under the larger category of intrinsic (internal, as apposed to external) motivation. Personal Example: My faith. I believe I am beautifully made. That I am created on purpose by a creator. So for me, while the new year is good timing, faith is my actual motivation for all things good for me: getting some regular physical activity, keeping up with my physical therapy techniques, slowing down for some mindfulness practices, drinking plenty of water, eating whole foods, avoiding sugar binges, and the like. So translate that for you. What is the intrinsic motivator, the belief system you have, that you can tap into and rely on for 1. knowing what's good for you and 2. the strength to do those things that are good for you (and avoid the things that aren't good for you)? Happy New Year! ~ Stephanie |
AuthorStephanie Yeager: Passionate about spreading the word of hope and healing for those like her, influencing a paradigm shift in the medical community toward greater understanding of chronic pelvic pain disorders, and prevention initiatives that may protect young women before onset can occur. Archives
September 2018
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